Huntington's Disease Association (Auckland) Incorporated — Health Charity in Auckland

Huntington's Disease Association (Auckland) Incorporated is a Charitable Trust charity in the Health sector, based in Auckland, Auckland. Annual revenue: $0.3M NZD. Financial data as at March 2025.

Mission: " Huntington’s disease does not discriminate based on gender or ethnicity." Therefore the organization exists to provide confidential, non-discriminatory services to all whānau/family members across generations who are affected by issues related to the inheritance of Huntington’s Disease. The association assists those living with Huntington’s disease and supports them on their journey through life with this condition. Huntington’s disease does not discriminate based on gender or ethnicity."

Registration Number
CC32057
Charity Type
Charitable Trust
Registration Date
2008-06-30
Status
Active
Sector
Health
Location
Auckland, Auckland
Email
huntingtonsakld@xtra.co.nz
Data as at
March 2025

Beneficiaries: Children / young people, Family / whanau, People with disabilities

Financial Summary

Total Revenue
$0.3M NZD
Total Expenses
$0.3M NZD
Total Assets
$0.1M NZD
Net Assets
$0.0M NZD
Reserve Months
0.0 months of operating expenses
Staff Count
4
Volunteers
0
Financial Year End
2025-03-31

Financial History

YearRevenueExpensesNet Assets
2025$0.3M$0.3M$0.0M
2024$0.3M$0.2M$0.0M
2023$0.2M$0.2M$0.0M
2022$0.1M$0.2M$0.0M
2021$0.2M$0.2M$0.1M
2020$0.2M$0.2M$0.1M
2019$0.3M$0.2M$0.0M
2018$0.1M$0.2M$0.0M
2017$0.2M$0.2M$0.1M
2016$0.2M$0.2M$-0.0M

Board Members and Officers

Current Officers (0)

NameRoleAppointed

Former Officers (32)

  • Amy Chapman — Secretary (departed 2025-08-30)
  • Emma Burnip — Secatary
  • Manu Sione — Committee Member (departed 2021-07-21)
  • Jacqueline Higgins — Secretary (departed 2016-05-23)
  • Lyn Dyson — Committee Member (departed 2018-07-31)
  • Matthew Hobbs — Treasurer
  • Malvindar Singh-Bains — Committee Member (departed 2019-08-26)
  • Emma Lambert — Committee Member (departed 2018-04-04)
  • Trevor Lowe — Treasurer (departed 2016-05-03)
  • Janine Butters — Chair
  • Chelsea Butters — Committee Member (departed 2016-05-31)
  • Sue Giddens — Committee Member (departed 2014-11-29)
  • Juliet Caldwell — Secretary (departed 2014-12-23)
  • Chris Malcolm — Chair (departed 2018-06-26)
  • Jo Dysart — Committee Member
  • Leanne Knox — Committee Member (departed 2016-12-08)
  • Angela O'dea — Committee Member (departed 2011-05-02)
  • Laura Fogg — Secretary (departed 2012-10-29)
  • Richard Price — Treasurer (departed 2011-07-09)
  • Mark Dunlop — Chair (departed 2016-02-16)

Funding Sources

  • Foundation North — $25,000
  • Foundation North — $25,000
  • Foundation North — $25,000
  • Foundation North — $25,000
  • Foundation North — $25,000
  • Foundation North — $25,000
  • Foundation North — $25,000
  • Pub Charity Limited — $22,975
  • Foundation North — $20,000
  • Four Winds Foundation Limited — $15,000
  • Lion Foundation — $4,164

Similar Charities in Health

HealthCharitable Trust

Huntington's Disease Association (Auckland) Incorporated

CC32057Auckland, AucklandRegistered 30 Jun 2008
Data updated: 1 Nov 2026
Financials31 Mar 2025Rating1mo ago

Financial data as at March 2025. Sourced from Charities Services register.

NR
Not rated — Summary-form filing — not enough detail to grade

XRB Tier 3 lets smaller charities (total expenses of $5M or less; $2M for periods ending before 28 March 2024) file a simple-format performance report instead of full PBE standards. The return reports totals but not the program/administration split or the line-item detail our template needs. No red flags were detected in what was filed, and revenue is below our $2M rating threshold. (Whether the accounts must be audited is a separate Charities Act test: audit from $1.1M of operating expenditure, review from $550K.) A letter grade is withheld rather than assigning one that would be driven by the template-fit, not the charity's operations. The charity's filed figures are shown above, and any structural concerns a donor would want to look at are surfaced separately. (v3.3 — set at the pre-2024 Tier 3 ceiling; matches Charity Navigator and CharityWatch US practice.)

How ratings work →
Revenue

$279.0K

Expenses

$274.3K

Assets

$146.8K

Staff

4

Financial data from Charities Services annual return (FY2025). Ratings calculated using CharityData v3.1.1 methodology.

About

Mission

" Huntington’s disease does not discriminate based on gender or ethnicity." Therefore the organization exists to provide confidential, non-discriminatory services to all whānau/family members across generations who are affected by issues related to the inheritance of Huntington’s Disease. The association assists those living with Huntington’s disease and supports them on their journey through life with this condition. Huntington’s disease does not discriminate based on gender or ethnicity."

Who We Serve

Beneficiaries
Children / young peopleFamily / whanauPeople with disabilities

Key Statistics

Annual Revenue
$279.0K
Total Expenses
$274.3K
Net Assets
$15.5K
Staff
4
employees
Volunteers
0

Financial Trends

Financial Trends (17 Years)

Revenue Breakdown

Expense Breakdown

API Data

Based on annual return data. Detailed program/admin breakdown not available.

Financial Health Dashboard

Cents to the Cause
100c
For every $1 spent, 100c reaches programs
Strong
Sustainability
6.4mo
Could operate 6.4 months with zero revenue
Healthy
Fundraising Cost
-
No fundraising data
No data

Based on latest annual return data. Metrics are calculated from reported financial data and may not reflect the full picture. View methodology

Revenue Diversification

50
Score /100
Concentrated
HHI: 5,001
Other50.7%
Donations49.3%

HHI (Herfindahl–Hirschman Index) measures concentration across 6 income categories. Lower HHI = more diversified. Score above 60 indicates healthy diversification.

Peer Comparison

Ranked against 138 peers · Health · $100K – $1M

Rating Score
0
#39/139
Revenue
$279K
#70/139
Reserve Months
0.0
#1/139
Surplus
$5K
#86/139
Staff Cost %
74%
#139/139

Peers are charities in the same sector and revenue size band. Rankings are based on the latest available data.

Rating

Score: /100
Financial
0
Governance
20
Transparency
65
View Full Score Breakdown

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Latest Audit

FY2022
Clean
6 years of audit history

Contact Details

Address
Auckland, Auckland

Registration

Registration NumberCC32057
Entity TypeCharitable Trust
Registered30 Jun 2008
StatusRegistered

Companies Office

StatusRegistered
Entity TypeIncorporated Society
Incorporated9 Feb 1981
Registered office
7a Taylors Road, Morningside, Auckland, 1025

Sector & Activities

Primary Sector
Health
Activities
Provides advice / information / advocacyProvides services (e.g. care / counselling)

Data sourced from Charities Services register and publicly available annual returns. Our datasets may not be complete. Automated analysis can produce errors. Scores are calculated using disclosed methodology and are analytical tools, not investment ratings or recommendations. If you believe any data on this page is incorrect, please contact us at hello@charitydata.co.nz. For informational purposes only. Not investment advice.